Our YouCaring Campaign has been temporarily taken offline after the company was acquired by GoFundMe. Watch this space for a renewed fundraiser link!
We aim to raise $15,000 in order to establish a 501(c)(3) non-profit organization in 2018-19. This will allow us to raise funds and formalize our efforts.
The money will be used for accounting and attorney fees for initial startup; creating an online new patient “tool kit” and other documents for prospective researchers to learn more; marketing materials; and planning of annual family and scientific gatherings. Any funds not used for start-up efforts for PACS1 Smiles will be rolled into the non-profit as seed money.
The Global Parents of PACS1 Smiles